Early PT...
Dear Nicky,
Your therapist came to our house first thing this morning. We changed the schedule to make it more efficient. It was good because he's fresh and you're fresh, and I think it made a positive difference. You were in a good mood and very affectionate, doling out lots of smiles and hugs. At one point while you were resting, your PT stroked your head in a touchingly gentle manner. Afterward, you really had an appetite and ate your cereal nicely. Later you went down for a nap, and of course when I put you down, Junie wakes up, so no rest for daddy. After lunch I toted you guys out to the van and we went to the bank to pay the mortgage. A nice day. Your finger still looks a little red, but I'm keeping an eye on it.
Love,
Dad
Your therapist came to our house first thing this morning. We changed the schedule to make it more efficient. It was good because he's fresh and you're fresh, and I think it made a positive difference. You were in a good mood and very affectionate, doling out lots of smiles and hugs. At one point while you were resting, your PT stroked your head in a touchingly gentle manner. Afterward, you really had an appetite and ate your cereal nicely. Later you went down for a nap, and of course when I put you down, Junie wakes up, so no rest for daddy. After lunch I toted you guys out to the van and we went to the bank to pay the mortgage. A nice day. Your finger still looks a little red, but I'm keeping an eye on it.
Love,
Dad
posted by The Walkin Dude at 8:45 PM
1 Comments:
Happy Birthday Nicholas! I cannot believe you are two already!
Nicky's Dad, you don't know me, but I just wanted to say hello and let you know what a big impact your son has had on our lives. I first came to know about Nicholas a little over two years ago. I was 17 weeks pregnant with our first child, had a slightly abnormal AFP score, and went to the Baby Center Online DS board looking for some support. I was scared, unsure what to do. I had a level 2 ultrasound immediately following the AFP results. The doctors were confident my baby didn't have T21 after the ultrasound, but offered amnio in the following days so I could know for sure. The same day I found the BC board, your wife posted about your prenatal diagnosis with Nicholas. I quitely lurked there, reading her posts. I was so moved by her words. I could sense the fear and sadness, but also her inner strength and resolve. I will never forget reading her words. She wrote she wished she didn't have those results prior to Nicky's birth, that is was hard to hold that information without first holding her baby. It stuck with me, and right then and there I decided I felt the same way—for me, it was better not to know. I wasn't sure what I would do with the knowledge of an amnio, was scared what I would be forced to decide based on what I am sure would have been very biased and antiquated information from my doctors. So I held my breath, and tried to keep positive the rest of my pregnancy. In the back of my mind I just knew though. When my son David was born, nobody expected at first, but 4 hours later the on call ped came in and mentioned he suspected T21. I was shaken to the core, sad and depressed. When we got home from the hospital, I summoned up the courage to return to the DS board. It must have been fate, cause that very same day, your wife posted notes from the deep end. Oh how I cried reading those words, but I cannot express how much it touched me, lifted my spirits and gave me hope that I too would be okay. I gained more courage to introduce myself online to her and other moms on the board, and they were all so amazingly supportive and kind those first months when I really needed it most. David is now 20 months. He is the love of our lives, his smile lights up a room. He's clever, charming, cute and funny. Like you, we have our trying days with multiple therapies and appointments to juggle, but I cannot imagine this world without him. I trully believe a large part of why he is here is because of your journey with Nicholas. I don't get back to the online boards much these days, but I do keep up with a few blogs. I have really enjoyed reading yours and keeping up with all the wonderful and amazing things Nicholas is doing. I have never seen a photo of Nicky, but I imagine him to be an absolutely handsome little guy. And boy, does he sound smart! You are an amazing father and writer—your love, adoration and pride for Nicholas shines through in your words
I know this is a bit longwinded, but I just wanted you to know as you celebrate your son's second birthday what an inspiration he is, and what a big impact he and your family has had on me and the T21 community. Please tell J I say hello, and please keep posting about your wonderful boy!
Best wishes,
Kelly, proud mom to David
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