Mondays, meh...
Dear Nicky,
Today was a fine day where not much happened. Your mom and you went to meet this other woman that lives in Hoboken who also has a son with Trisomy 21. I happily stayed behind to do laundry and stuff like that and also to take a shower. Mom was very happy when you guys came back, because the lady was very nice and also because you...well, you seemed so much better off than the other kid with T21 that was there. You were more active and alert and healthier looking, which was great for Mom because, to be honest, we're still adrift in a stormy sea when it comes to how worried we are about you. I do feel bad for the other kid and his mom; maybe she's a strong woman, but if my kid were toward the more pronounced end of the T21 spectrum and I met a woman whose kid looks extremely normal (like you do) I'd feel pretty sad, my friend. I think any parent, if they're a good parent, feels real pain whenever their kid has to struggle with anything. I know we do, and I also know in my heart your struggles won't be so bad, because you're a smart, strong, brave, and wonderful little kid.
Love,
Dad
Today was a fine day where not much happened. Your mom and you went to meet this other woman that lives in Hoboken who also has a son with Trisomy 21. I happily stayed behind to do laundry and stuff like that and also to take a shower. Mom was very happy when you guys came back, because the lady was very nice and also because you...well, you seemed so much better off than the other kid with T21 that was there. You were more active and alert and healthier looking, which was great for Mom because, to be honest, we're still adrift in a stormy sea when it comes to how worried we are about you. I do feel bad for the other kid and his mom; maybe she's a strong woman, but if my kid were toward the more pronounced end of the T21 spectrum and I met a woman whose kid looks extremely normal (like you do) I'd feel pretty sad, my friend. I think any parent, if they're a good parent, feels real pain whenever their kid has to struggle with anything. I know we do, and I also know in my heart your struggles won't be so bad, because you're a smart, strong, brave, and wonderful little kid.
Love,
Dad
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